10 Phrases to Practice for Self-Advocating

Self-advocacy is a powerful skill, especially when managing a chronic illness. But communicating needs, preferences, and concerns in medical settings can feel daunting. Many people with chronic conditions find it challenging to speak up, especially if they’ve had negative experiences with dismissive providers. However, using certain phrases can help you navigate conversations, make your needs known, and build a more collaborative relationship with your healthcare team. Here are ten phrases to keep in your self-advocacy toolkit, plus tips to help you feel more empowered.

10 Phrases to Practice

1. "I need a moment to process that."
   It’s easy to feel overwhelmed when complex information is shared in a short appointment. Asking for a pause gives you time to gather your thoughts and assess any questions you might have. This small phrase can also help center you in the conversation, showing that your understanding is a priority.

2. "Can you explain that in simpler terms?"
   Medical jargon can be intimidating. Asking for simpler explanations helps break down barriers to understanding your care. Clear explanations lead to better-informed decisions and may improve the overall treatment experience.

3. "This is how my condition affects my day-to-day."
   Healthcare providers may not always grasp how deeply chronic illness impacts daily life. By sharing specific examples, you give insight into your lived experience, which may influence treatment recommendations and adjustments.

4. "I’d like to understand all my options for managing this."
   This phrase opens up the discussion for various treatment options, including lifestyle adjustments, medication, and other therapies. It shows that you’re interested in learning about the full spectrum of possibilities and allows the provider to educate you without bias.

5. "Could we explore a diagnosis of __?"
   If you’ve done some research or feel your symptoms align with a particular condition, it’s okay to suggest it as a possibility. Your insights can help guide the diagnostic process, especially if you feel something may have been overlooked.

6. "What can I expect from this treatment?"
   With chronic conditions, it’s essential to set realistic expectations. This phrase can lead to an open discussion about side effects, potential improvements, and the timeline for assessing results, helping to manage your expectations and prevent unnecessary frustrations.

7. "Is there a specialist you recommend for my symptoms?"
   Many chronic conditions have overlapping or complex symptoms that benefit from specialized care. Asking for a specialist referral demonstrates your commitment to targeted, expert support and may increase your chances of comprehensive care.

8. "I’m not comfortable with that approach. Can we discuss alternatives?"
   Feeling uneasy about a treatment? This phrase allows you to voice discomfort without creating confrontation. Instead, it leads to a constructive discussion about finding a path you feel comfortable pursuing.

9. "Can I have a summary of today’s visit?"
   Appointments often cover a lot of information. A written summary ensures you have all the necessary details to follow up on instructions, medication changes, and next steps, helping you manage complex care plans more easily.

10. "I feel more comfortable when [specific request]."
    This phrase makes it easier to express preferences that can enhance your care experience. Whether it’s about communication style or small adjustments in the office environment, sharing what makes you feel comfortable can foster a more supportive relationship with your provider.

Why Self-Advocacy Matters

Self-advocacy can empower you to take an active role in your healthcare, which may lead to improved outcomes and a sense of control in managing your illness. Speaking up for yourself can help break down misunderstandings and build mutual respect. It also helps establish you as an informed partner in your care. When providers see that you’re prepared, knowledgeable, and proactive, they’re more likely to engage in collaborative discussions.

Many people with chronic illnesses report feeling dismissed or unheard in medical settings. But sharing even small bits of personal experience can open doors to understanding. For example, explaining how your symptoms fluctuate throughout the day can reveal the complexities providers may miss by focusing solely on diagnostic data.

Practical Tips for Practicing These Phrases

Role-play with a friend or family member: Practice makes perfect, and rehearsing can help build confidence.

Write phrases down in a notebook or on your phone: Having a “cheat sheet” handy can be a lifesaver in the moment.

Start with one or two phrases: Pick phrases that resonate most with you and incorporate them gradually until you feel comfortable.

Further Resources on Self-Advocacy

Medical Gaslighting by Ilana Jacqueline offers insight into recognizing and addressing the experience of feeling dismissed in medical settings, with strategies for effective self-advocacy. Additionally, online or in-person patient-led forums can offer validation and practical advice from others with similar experiences.

Self-advocacy is a skill that develops over time. Start small—maybe with just one phrase in your next appointment—and notice how it impacts your care experience. Remember, your voice matters. Advocating for your needs isn’t about creating conflict; it’s about building a bridge of understanding. With each conversation, you’re taking steps toward a healthcare partnership where your experiences, insights, and needs are valued.

How Chronius Can Help
Chronius is committed to redefining primary care for those with chronic and invisible illnesses. Our virtual primary care services bring expert, empathetic care right to your home, making it easier for you to manage your health. We offer personalized care plans tailored to your specific needs, ensuring that you receive comprehensive support without judgment or dismissal. With Chronius, you gain a healthcare partner who listens, understands, and empowers you to take control of your health. Discover the difference of patient-focused care that values and respects your experience. Book an appointment today! (Currently available from anywhere in Florida)