Medications and Heat Waves: Spoonie Sun Sensitivity Guide

As someone who lives with multiple autoimmune disorders, I often find myself managing an array of medications and their side effects. One side effect many of us spoonies must be particularly vigilant about is photosensitivity. Photosensitivity, or sun sensitivity, can make our skin react abnormally to sunlight, leading to severe sunburns, rashes, blisters, and even pigmentation changes. For those of us with chronic illness, autoimmune conditions, or on certain medications, this heightened sensitivity can significantly impact our daily lives. It’s not just about avoiding direct sunlight; it's about understanding all of the ways UV rays can reach us, even in seemingly safe environments. But did you know that UV exposure can happen in some unexpected places and times? From driving in a car to sitting by a window indoors, there are numerous scenarios where we might inadvertently get more sun exposure than we realize. These surprising hotspots can catch us off guard and aggravate our symptoms, making it crucial to be aware and take proactive steps to protect our skin.

What is Sun Sensitivity?

Sun sensitivity, or photosensitivity, is an abnormal skin reaction to sunlight, particularly to UV rays. For those of us with chronic illness, autoimmune disorders, or those of us on certain medications, our skin can become especially sensitive to the sun. This heightened sensitivity can result in a range of symptoms, including:

  • Sunburns: Severe sunburns can occur quickly, even with minimal sun exposure.

  • Rashes: Red, itchy rashes or hives can develop on sun-exposed areas.

  • Blisters: In some cases, painful blisters can form.

  • Pigmentation Changes: Areas of the skin can become darker or lighter than the surrounding skin.

  • Exacerbation of Autoimmune Symptoms: Sun exposure can trigger flares or worsen symptoms in autoimmune conditions like lupus.

Drug-Induced Photosensitivity

As spoonies, many of us are on medications that can increase our skin's sensitivity to sunlight. Here are some common culprits and how to manage them:

  • Antibiotics (ex., tetracyclines, fluoroquinolones): These can cause severe sunburns even with short sun exposure. Avoid sun exposure and use broad-spectrum sunscreen.

  • Antifungals (e.x., griseofulvin): Increase sun sensitivity, so use sunscreen and wear protective clothing.

  • Non-steroidal anti-inflammatory Drugs (NSAIDs) (ex., ibuprofen, naproxen): Can lead to photosensitivity; take precautions when outdoors.

  • Antidepressants (ex., tricyclics, SSRIs): May cause increased sensitivity to the sun; limit sun exposure and use sun protection.

  • Diuretics (ex., thiazides): Can increase the risk of sunburns; always use sun protection.

  • Antihistamines (ex., promethazine): Can make the skin more sensitive to the sun and protect your skin when outside.

To manage photosensitivity effectively, people should avoid prolonged exposure to sunlight while using these medications. When exposure cannot be avoided, people should use a broad-spectrum sunscreen with an SPF of preferably 30. Be sure to check sunscreen labels for the ingredients zinc oxide, titanium oxide, or avobenzone, which protect against both UVA and UVB rays. Though UVB rays cause most sunburns, some photosensitivity reactions are triggered by UVA rays. Additional precautions include:

  • Following the label directions: At least one full ounce (about three quarter-size dollops) of sunscreen should be applied 30 minutes before exposure. The product should be reapplied after swimming or excessive sweating.

  • Wearing protective clothing: Wide-brimmed hats, sunglasses, and tightly-woven, long-sleeved shirts and pants are recommended.

  • Avoiding exposure during the high-intensity hours of sunlight between 10 a.m. and 4 p.m.

If you continue to experience a photosensitive reaction despite taking precautions, speak with your healthcare provider about possible adjustments to your medication regimen.

Medications Increasing Heat Illness Risk

In addition to photosensitivity, many medications can increase the risk of heat-related illnesses. These include:

  • Diuretics: These can cause dehydration or lead to an imbalance of electrolytes, making it harder for the body to regulate its temperature.

  • ACE inhibitors and beta blockers: These can increase the risk of fainting and falling, particularly in extreme heat, and suppress the feeling of thirst.

  • Certain antipsychotic medications: These affect your ability to sweat, increasing the likelihood of overheating.

  • Some antidepressants and thyroid hormone replacement medications: These can increase sweating, repress thirst, and impair temperature regulation.

  • Stimulants (e.x., amphetamines): These can raise body temperature, increasing the risk of heat-related illnesses.

  • Some over-the-counter antihistamines: These can impair temperature regulation and reduce sweating.

Recognizing Heat-Related Illnesses

Symptoms of heat exhaustion include heavy sweating, cold, pale or clammy skin, headaches, nausea, vomiting, muscle cramps, dizziness, and fatigue. Heat stroke is more severe, with symptoms such as a body temperature of 103°F or higher, red or hot skin, confusion, and possible unconsciousness. Seek emergency medical care if these symptoms occur.

Staying Safe in Hot Weather

  • Stay in air-conditioned environments or visit cooling centers.

  • Drink plenty of water and electrolyte-infused beverages.

  • Wear loose-fitting, light-colored clothing.

  • Limit outdoor activities to early morning or late evening.

  • Know the signs of heat-related illnesses and act promptly if they appear.

Surprising Hotspots for Sun & Heat Exposure

  1. Driving in a Car: Car windows, especially side windows, don’t block all UV radiation. Wear sunscreen daily, even if you're just running errands.

  2. Sitting by Windows Indoors: Most windows block UVB but not UVA rays, which penetrate deeper into the skin. Apply broad-spectrum sunscreen if you spend a lot of time near windows.

  3. Overcast Days: Up to 80% of UV rays can penetrate clouds. Always wear sun protection, regardless of the weather.

  4. At High Altitudes: Less UV radiation is filtered out at higher altitudes. Be diligent with your sun protection routine.

  5. On Airplanes: Flying at high altitudes increases UV exposure. Draw the window shade and apply sunscreen before your flight.

  6. During Water Activities: UV rays reflect off the water, increasing your exposure. Use waterproof sunscreen and reapply frequently.

  7. Under Shade or Umbrellas: UV rays can reflect off surfaces like sand, water, and concrete, reaching you even under an umbrella. Wear protective clothing and apply sunscreen.

  8. Gardening or Yard Work: Prolonged exposure, even in the early morning or late afternoon, can lead to sun damage. Wear a hat, long sleeves, and sunscreen.

  9. Winter Sports: The combination of high altitude and reflective snow can lead to significant UV exposure. Protect your skin with sunscreen and wear UV-blocking goggles.

  10. Near Reflective Surfaces: Surfaces like sand, water, and concrete can reflect UV rays. Be mindful of your surroundings and take precautions.

  11. At Outdoor Events: Plan ahead by bringing sunscreen, a hat, and protective clothing.

  12. Shopping at Outdoor Markets: Prolonged time outdoors requires sun protection.

Managing photosensitivity is crucial for those of us living with chronic illness. Understanding the unexpected places and times where we can be exposed to UV rays helps us take proactive steps to protect our skin. By incorporating daily sun protection routines, such as applying broad-spectrum sunscreen, wearing protective clothing, and being mindful of our environment, we can minimize the risks associated with sun exposure. It's essential also to stay informed about how our medications might increase our sensitivity to the sun and follow best practices to avoid adverse reactions. Remember, photosensitivity isn't just about avoiding sunburns; it's about maintaining our overall health and preventing the exacerbation of symptoms. Taking these precautions allows us to enjoy our lives more comfortably and confidently, knowing we are protecting ourselves from the hidden dangers of UV exposure. Stay safe, fellow spoonies, and let’s continue to support each other in our journeys toward better health.

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Chronius is committed to redefining primary care for those with chronic and invisible illnesses. Our virtual primary care services bring expert, empathetic care right to your home, making it easier for you to manage your health. We offer personalized care plans tailored to your specific needs, ensuring that you receive comprehensive support without judgment or dismissal. With Chronius, you gain a healthcare partner who listens, understands, and empowers you to take control of your health. Discover the difference of patient-focused care that values and respects your experience. Book an appointment today! (Currently available from anywhere in Florida)

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